News & Updates


Update on Bryan's Condition

 

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Sep
11
Since the last update, we got word from Infectious Diseases that the infections are gone so the shunt will possibly be Tuesday. It had also been awhile since we got responses from Bryan, aside from kisses, so yesterday we were excited when he responded a few times.
When asked to raise his eyebrows if he can hear us, he raised his eyebrows. We asked him to do this twice and both times he did. Then, when trimming his nose hairs we told him we needed to see his nose, he flared his nostrils. Both times when asked. **Note from Bry's seesters: We thought filing his toenails was our limit....then came the nose hairs.
We know Bryan is getting back to the place he was a month ago, mouthing words and hopefully more and more responses.

Today being the 10-year anniversary of 9/11, we will be praying for those who lost loved ones and who were otherwise affected by the tragedy. Bryan, having wanted to be a firefighter at that time, was deeply impacted by the selflessness of the first responders of that day and really drove him to pursue a career in helping people. From what we hear from his co-workers, he is amazing and compassionate about what he does.

Even though Bry isn't a fan of country music, the song we selected is to honor those injured or who lost their lives and those who lost their loved ones.


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Sep
04

 The past week or so, Bryan has been very sleepy, with minimal responses. It seems the infections had worn him out. The doctors will be doing a culture to test for infections within the next couple of days. If they come back negative, he will probably get the shunt this week or next. So far, the bone flap is still doing good and is helping Bryan absorb the fluids. Despite his sleepiness, we continue to talk to him, play music, do the range of motion to keep him from getting stiff, put the Giants games on and we are keeping up with his mani/pedis. One of his nurses said he has the best feet in ICU. Bry would be so glad to hear that!

Last night the Giants organization, along with the San Francisco Sheriff’s Department hosted Strike Out Violence day at AT&T park. We were honored to be on the field with other victims of violence and to be a part of bringing awareness to a preventable situation. Dave was then given the ball and he threw in the first pitch. He did great, the ball made it to Eli and would have been a strike if it hadn’t dropped right on the plate. 

We had the amazing opportunity to sit next to Barry Bonds. Barry has been active in visiting Bryan and has initiated a college fund for Tyler and Tabitha. You may notice that we have added the link to our website.

 
The Giants have all been so supportive and caring. Barry and Jeremy’s visits were very heartfelt and personal, Timmy‘s donation and Pablo hosting a fundraiser in Walnut Creek were amazing. We want to thank the ENTIRE Giants Organization for their continued support for Bryan!!
 
We picked this song not only because it's about San Francisco, but Train also performed it at the Giants game dedicated to Bryan in April.

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Aug
28
Bryan's temperature is thankfully back to normal. He is still on antibiotics to clear up the infections. Dr. Manley's team will wait a few days to check to see if the infections are completely gone. If that is the case, then a shunt procedure will be scheduled.

A few updates ago we had mentioned Bryan mouthed some words to us that we weren't quite ready to share. Because he had such a huge step backwards we are hoping he will get back to mouthing "I LOVE YOU"!! On three separate occassions, Bryan told us that he loved us. His nurses, a chaplain and his friend were all able to witness this amazing and beautiful moment. We have been waiting a very long time to hear these words from Bryan.

We cannot wait for more special moments with him.

We couldn't think of more inspiring song than Over the Rainbow. We will NEVER give up on him!

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Aug
22
Hi everyone,

We all know that saying, 2 steps forward, one step back…the last 2 weeks Bryan had, according to Dr. Manley, 3 steps forward, but this past weekend was two steps back. After him being very sleepy, unresponsive and having a slightly elevated fever his doctors ran some tests. His CT scans came back looking ok, his ventricles were only a little larger with the lumbar drain being clamped but it was obvious that he would probably need a shunt.
A spinal fluid test came back positive for an infection, he has a Urinary Tract Infection and staph. Over the weekend his temperature got to an all time high of 39.9, which in Fahrenheit is about 104. They quickly started him on antibiotics and put an ice vest on him to cool him down. His temperature fluctuated all weekend and as of today his temp was 38.4, which is still about 101. They can’t put the shunt in until the infections are gone. Tyler and Tabitha visited today. He gave them kisses, and when asked if he remembers them, he deliberately closed his eyes. We know Bryan is strong, so we hope this passes soon.

In light of the fan violence that occurred at Candlestick park for a pre-season 49’er/Raider game, we felt the need to address it. We have felt, since March 31st, that this tragedy did not happen to Bryan for nothing. We had hoped it would teach people that violence, specifically at sporting events, is unnecessary and wrong. Nobody should feel afraid to root for their team, or bring their families to games. When someone is injured, they are not the only victims. Their families, loved ones and worst of all, their children are victims as well. Our thoughts and prayers are with the victims of Saturday night’s game and their families.

Where is The Love is a song about all the violence we face in the world today. We felt it was perfect for this update.

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Aug
17
Hi Everyone!

We’ve had a pretty amazing week and a half with Bryan. He’s still doing tons of kissing…Ann got birthday kisses and Tyler and Tabitha got kisses as well. They were so excited! Bryan has also been mouthing words to us. He mouthed something that is so very special to us that we aren’t quite ready to share it yet, but it literally brought tears to our eyes. Slowly but surely he is showing some signs of improvement.

A week ago Bryan got his second prosthetic bone flap put in. He was watched very closely, as the first time he got the bone flap it had to be removed 2 days later. He still has the lumbar drain in and it looks like he will probably need a shunt..possibly next week. But so far, it looks like he is doing good with this bone flap. He’s still sleepy sometimes due to the fluid, but when he’s awake he is pretty responsive.

Our song this week is All You Need is Love because love has gotten us this far. Not only do we have the love of each other, but we have the love of all of you, Bryan’s supporters, and we truly feel like love is what is helping Bryan through this.


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Aug
12
After dilligantly chapsticking up for several days, Erin finally got her much anticipated kiss from Bryan! And it was well worth it. Some days we get very minimal if any responses and other days we get responses like this.

Ann, Erin, Bonnie and Bonnie's daughter Mikayla got to go down to L.A this past week and attend a fundraiser in Santa Monica at The Shack. Once again, we were blown away at how much people care about Bryan and how this has truly affected them. We met so many amazing people and wished we lived closer to The Shack so we could hang out there all the time. Even if it is filled with Philly's fans :) We also were able to stay at our same hotel; the Marriott downtown, and got to see many old friends and remembered why it was home to us for 6 weeks. We got back to our room that afternoon to find a plate of cookies, chocolate milk and a card signed by many employees that said "Welcome home. From your Marriott family". We also got to see all our friends at LAC USC. Everyone from the cafeteria, security, administration, ICU and his doctors. Our dear friend Brian's visit with us was much too short, but wonderful. We are so blessed to have met everyone and will hopefully always have them in our lives.

Today, we joined Matt Lee's family, friends and loved ones to say goodbye to him. Our hearts break for them. His life here was way too short and we saw how much he was loved. We only knew him 4 months, but that was enough to make a lasting impression on us and we will never forget him.

After Matt's funderal, we went to see Bryan. We were all pretty quiet and sad but hopeful and optimistic to see Bryan. We got there and he was pretty sleepy most of the time. Erin and Bonnie were saying goodbye and we were on each side of him bent down. Bonnie asked Bry to give her a kiss goodbye. He opened his eyes, turned his head puckered up and gave her a kiss. Erin then asked for a kiss. He turned his head towards her, puckered up and gave her a kiss too. We called it the Seester Sammich. We are so happy and filled with so much love for him. With Matt as a guardian angel, we know Bry can pull through this.

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Aug
08
Hi everyone!
Since getting the lumbar drain last week, Bryan has been more alert and responsive as the days go by. They have the fluid draining really slow so his responses had been pretty minimal...until yesterday. Yesterday we got the most response from Bry to date. He lifted his left leg slightly when asked, he raised his left arm everytime we asked if we could hold his hand, and the best part? Bonnie asked Bryan if she could have a kiss and every time she asked him, he puckered his lips. The final time when she was leaving, Bonnie asked again for a kiss. Bry turned his head towards her, puckered his lips for the kiss, then turned his head back. The nurse was shocked and excited to see that!
**side note from Bonnie: I have never, in my 32 years, thought I would kiss my brother on the lips, let alone that many times. But cant wait to do it again!
**side note from Erin: I couldn't be there to see it, but I never thought I would be jealous of my brother kissing my sister on the lips...regardless, I am chapsticking up for my next visit.

While we are writing this update we are driving to LA so we can't include our song until we get there. The song: Don't Stop Believing. The reason: not only is it Bryan's karaoke song of choice, but we want to say that we have never stopped believing, wont ever stop believing, and please...don't stop believing in Bryan!

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Aug
02
Today Bryan went in for a CT scan and an MRI. It was decided to stop the blood thinner for his blood clots and to put in an IVC filter. He has had this before to stop blood clots from shooting to his lungs. They stopped the blood thinner because he will also be getting another lumbar drain tonight or tomorrow. He just isn’t absorbing the fluid completely on his own. The drain will work slower this time around, since before it drained too much, too fast. They decided to do this tonight because the past week he has been extremely sleepy and has had very minimal response to commands. The EEG is also back on him to monitor for any seizure activity. We will keep you all posted.

We have met some great people during these past 4 months. 3 of those people are the friends that were with Bryan the night of his attack. Corey, Jeff and Matt. Unfortunately, Matt passed away July 31st.

Our family feels that we have no words of comfort to Matt’s loved ones, as we knew him such a short time. But in that short time, we came to know a great guy who was always smiling. We feel so extremely lucky and honored to have met him. This group of friends has had a rough 4 months; God…we pray for leniency. While Bryan was the one seriously injured that night, there were 4 victims. Please pray for Matt Lee and his loved ones, as well as Corey and Jeff…they will need strength to help them through these hard times.

Matt….May you rest in peace.


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Jul
30
Hi everyone,

This week for Bryan has brought minimal response, a lot of sleeping and a CT scan that showed excess fluid. This means we wait and see if he can start absorbing the fluid on his own. If he doesn't, then there will be talk about another lumbar drain (draining slower then before), or possibly a shunt or another form of drainage. We did get him to pucker twice to get vaseline on his lips though. Between his mani/pedis, and moisturizing his face and skin, he's still the great looking guy we all know and love.

This week for us brought a range of emotions. We get frustrated, sad, happy, eager...you name it. We his seesters, Erin and Bonnie, went with the music that we grew up with and love thanks to Bryan for this update. Crazy Train by Ozzy Osbourne. Like the line says, "I'm living with something that just isn't fair," and "I'm going off the rails on a crazy train." This has been a crazy ride, but we are all on this train together.



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Jul
25
Hi everyone…as you know, last week was a roller coaster of emotions for us. We had the high of Bryan getting the bone flap put in, to the low of him experiencing a seizure and needing emergency surgery to remove it. We didn’t know after, what that meant in terms of his recovery. Then, the all time high (to date) of him mouthing his last name. The days after that, his responses slowed down. A CT scan showed he did have extra fluid around his brain, which could be the reason he was getting sleepier so yesterday they decided to put in a lumbar drain. It was the less invasive solution to rid the fluid. An hour or so later, his heart rate dropped drastically and he wasn’t becoming as alert as they had hoped. We also noticed that his head looked more concaved then usual. They clamped the drain and took him for another CT scan. They think that the drain was actually working too well. After having it clamped, his heart rate went back up and this morning, the nurse reported he is responsive.

When Bryan is asleep, and not responding, a song always comes to mind that Brian, our LA friend included on the CD he made us all…Waiting for My Real life to Begin. We often wonder what Bryan is dreaming about, and if he’s resting, knowing that he needs the rest because what he’s going through now is not what his real life will be. A part of the song that really sticks out to us is, “I’m walking in my old footsteps, once again. You say, be here now, forget about the past.”

Bryan has proved his strength throughout all this and we know he will continue to amaze us all.


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Stow Family Album

Easter 2004