Hard to believe the 6 month mark just passed. The day we got that phone call on March 31st seems like almost an eternity. Bryan continues to show good progress and while we are so excited and grateful, we pray it continues.
An ultrasound showed that Bryan still has blood clots. While they haven’t gotten smaller, they also have not gotten bigger so that is good. The doctors are still working on getting the right amount of blood thinners to get the clots under control.
Bry’s trach was finally removed and the site has closed up and healed, which makes him much more comfortable. Bryan continues to talk with a stronger and clearer voice, but he gets very tired easily and when he doesn’t want to talk, he doesn’t.
Bryan had an exciting week. On Saturday, Bruce Bochy came to visit. He gave Bry his signed SF hat that he wore in. He spent about 45 minutes talking to him and telling him that he wanted him at Spring Training! As he was leaving, Bryan said to him, “Bye. I love you.” Mr. Bochy said I love you too!
On Sunday, Bryan’s friend arranged for one of Bryan’s all-time favorite bands to visit. Queensryche was playing in SF and came by before one of their shows. When they first got there and were outside his room gowning up, Bonnie said to Bryan to look out the doors; that Queensryche was right outside. He looked out and said, “They are all dressed up. I’m not dressed up.” We assured him he looked great and had to laugh because in true Bryan fashion, he was concerned about how he looked. When they walked in, Bryan got a small smile. Erin asked him if he knew who they were and Bryan said, “Queensryche. My favorite band.” The band stayed for about 45 minutes, asking questions and talking with Bryan. As they were leaving, Bryan actually asked them to dedicate a song to him. We later found out they dedicated our song choice for today’s update.
We love it when Bryan says things that are his own, as opposed to repeating things we say. Once, Erin and Bonnie told him that thousands of people were looking forward to him throwing out the first pitch next season. Bryan said, “I’m there.”